Resources & Education
We understand how difficult it is to battle DRESS Syndrome and how complicated this condition can seem. We will do our best to bring you evidenced based, relevant information by providing tools and resources that may help you along the way. Here you will find a collection of resources from how to report your case of DRESS Syndrome to the FDA to other non-profit organizations that support patients like you who have been affected by life-threatening adverse drug reactions.
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DRESS Patient Information Page in JAMA Dermatology (Journal of American Medical Association): A leading medical journal providing information on medical conditions for patients.
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DRESS Syndrome 2022 – Coming Together for DRESS Syndrome: Watch presentations and hear patient stories from the first global conference on DRESS Syndrome.
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Center for Drug Safety and Immunology (VUMC/CDSI): A center of excellence in human immunology that operates under the umbrella of the broader personalized medicine enterprise at Vanderbilt University Medical Center (VUMC). Its key scope and purpose is the advancement of understanding of the genetic and mechanistic basis of immunologically mediated adverse drug reactions.
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D.R.E.S.S. & COVID-19: A guide to vaccines and DRESS management.
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Severe Cutaneous Adverse Reactions to Drugs (SCARs): Here you will find other non-profits, organizations and information regarding severe adverse drug reactions (Including SJS/TEN).
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MedlinePlus: A service of the National Library of Medicine (NLM), the world's largest medical library, which is part of the National Institutes of Health (NIH). Relevant health and wellness information that is trusted, easy to understand, in both English and Spanish.
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United States Drug Allergy Registry (USDAR): A multi-center longitudinal prospective cohort, run by a team of allergists dedicated to improving clinical care while promoting public health and scientific discovery though improving the evaluation and management of drug allergies, particularly penicillin (PCN) allergies.
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Food and Drug Administration (FDA): The FDA Adverse Event Reporting System (FAERS) is a database that contains reports made on adverse events to medications. While your medical team should report your case of DRESS to the FDA, it is important that you also make a report to insure that every case is counted.
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DRESS Cases Reported to FAERS to date (as of 2/27/23): 21,301 reported. 1,447 deaths.
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MedWatch Online Voluntary Reporting: File your case of DRESS here >
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Medical Papers and Case Studies: Published resources and research on DRESS Syndrome
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Addressing D.R.E.S.S. Podcast: An educational podcast with patient and expert interviews