RegiSCAR >

Dedicated to severe cutaneous adverse reactions. Main task of the project is to establish a scientific network of people interested in severe cutaneous adverse dug reactions (SCARs) like Stevens-Johnson syndrome/toxic epidermal necrolysis (SJS/TEN), acute generalized exanthematous pustulosis (AGEP) and drug hypersensitivity syndrome with systemic symptoms (DRESS, HSS, DIHS) maintain anongoing multinational registry of such cases (and thus contributing to pharmacovigilance) and collect biological samples to study the pathomechanisms (and genetic background) of these diseases.

Key Medical Papers on SCARs

• Treatments for Severe Cutaneous Adverse Reactions

• Severe cutaneous adverse drug reactions

SJS Foundation >

The purpose of the foundation is to provide the public and medical communities with information on adverse drug reactions. Our goal is to make the public aware of  Stevens – Johnson Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN)  so that a quick diagnosis may be made. We also  provide emotional support for people with Stevens – Johnson Syndrome and Toxic Epidermal Necrolysis .

SJS/TEN Facebook Support Groups

• SJS Around the World Stevens Johnson Syndrome

• Stevens Johnson syndrome SJS and Toxic Epidermal necrolysis TEN..NSW..AUS

• Mi Historia con el Sindrome de Steven Johnson